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Old 05-23-2013, 12:55 PM   #801 (permalink)
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I, like many here, have been following Connor's story for several months. I have not posted for lack of knowing what to say. Dustin, your strength and your family's strength through this is truly inspiring. I cannot begin to imagine what you are going through. Connor is truly a champion. Stay strong, and know you all are in my thoughts and prayers.

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Old 05-23-2013, 08:55 PM   #802 (permalink)
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Up for tonight...
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Old 05-24-2013, 01:46 PM   #803 (permalink)
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Can't forget about Connor.... TTT.
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Old 05-24-2013, 02:26 PM   #804 (permalink)
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Old 05-25-2013, 10:40 AM   #805 (permalink)
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For Connor....
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Old 05-25-2013, 06:00 PM   #806 (permalink)
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TTT - hope things are going well Dustin
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Old 05-25-2013, 09:14 PM   #807 (permalink)
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Please read!


Couldnt believe my eyes, 2-1/1's #teamconnor :)
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Old 05-25-2013, 10:35 PM   #808 (permalink)
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The little baby boy will be fine. "By his (Jesus') stripes, the child is healed."
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Old 05-26-2013, 02:24 AM   #809 (permalink)
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I really hope so!

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The little baby boy will be fine. "By his (Jesus') stripes, the child is healed."
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Old 05-26-2013, 04:06 AM   #810 (permalink)
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my prayers and thoughts are with you and your family.
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Old 05-26-2013, 03:56 PM   #811 (permalink)
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My prayers are with your son and your family. God bless Connor.
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Old 05-26-2013, 09:57 PM   #812 (permalink)
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Up for Connor!
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Old 05-27-2013, 09:16 AM   #813 (permalink)
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Memorial Day bump for Connor
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Old 05-27-2013, 11:14 AM   #814 (permalink)
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Hoping Connor and his family have a great day today.
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Old 05-27-2013, 04:04 PM   #815 (permalink)
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Hoping that the weekend went smoothly,and a bump for tonight...
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Old 05-27-2013, 05:03 PM   #816 (permalink)
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Any update lately from FB?
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Old 05-27-2013, 05:13 PM   #817 (permalink)
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Nothing new today. Last post was about the Connor 1/1 Onesies. I hope that the Smith Family is having a great day today.

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Any update lately from FB?
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Old 05-27-2013, 09:38 PM   #818 (permalink)
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Any update lately from FB?
Connor has been doing pretty well. He has been a little fussier than usual but we aren't having major episodes every day which is GREAT. He has been having much better days since we added an extra dose of one of his meds. Hoping the weather gets nice again soon so we can take Connor outside!

We will be at D.Coy Ducks tomorrow! From 6-8 there is a silent auction and spaghetti dinner fundraiser for our sweet boy. We hope to see you there
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Old 05-27-2013, 10:08 PM   #819 (permalink)
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Sorry I haven't posted lately ... just really taking a toll on me as of late . Having trouble sleeping again . Stirring and emotionally crazy dreams . Kinda feeling heartbroken watching him decline . So many people who we have been fighting our fight with , and supporting each other with their and our children and their disease have been losing their babies . Seriously , 4 this month . Sooooooo sad . I am not ready .... But fear he is ... heartbroken was an understatement ...

That being said .. We have strung together quite a few of our new standard for good days
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Old 05-27-2013, 11:30 PM   #820 (permalink)
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Sorry I haven't posted lately ... just really taking a toll on me as of late . Having trouble sleeping again . Stirring and emotionally crazy dreams . Kinda feeling heartbroken watching him decline . So many people who we have been fighting our fight with , and supporting each other with their and our children and their disease have been losing their babies . Seriously , 4 this month . Sooooooo sad . I am not ready .... But fear he is ... heartbroken was an understatement ...

That being said .. We have strung together quite a few of our new standard for good days
This makes me cry man.


He is one of the toughest kids I have ever gotten to know. You and Kristen are thee strongest parents Connor could have ever asked for. I pray for you guys every day. When the bolder part of your statement comes you know damn well you can call me or any of the people on these boards and they will be all ears and tears with you.. Connor has touched and motivated so many people across the whole United States and Canada. We're here for you when nobody else is. Complete strangers to you and Kristen and would do anything in my power for you guys. Stay strong Dustin.
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Old 05-28-2013, 12:10 AM   #821 (permalink)
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I am way late but I just started reading about Connor and I am praying everyday for him! This brought tears to my eyes and I admire you and Connor! Just keep your head up man you can do it and Connor can too. Connor has some really strong parents to look up to and God will continue to bless you and Connor!

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Sorry I haven't posted lately ... just really taking a toll on me as of late . Having trouble sleeping again . Stirring and emotionally crazy dreams . Kinda feeling heartbroken watching him decline . So many people who we have been fighting our fight with , and supporting each other with their and our children and their disease have been losing their babies . Seriously , 4 this month . Sooooooo sad . I am not ready .... But fear he is ... heartbroken was an understatement ...

That being said .. We have strung together quite a few of our new standard for good days
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Old 05-28-2013, 03:03 AM   #822 (permalink)
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This makes me cry man.


He is one of the toughest kids I have ever gotten to know. You and Kristen are thee strongest parents Connor could have ever asked for. I pray for you guys every day. When the bolder part of your statement comes you know damn well you can call me or any of the people on these boards and they will be all ears and tears with you.. Connor has touched and motivated so many people across the whole United States and Canada. We're here for you when nobody else is. Complete strangers to you and Kristen and would do anything in my power for you guys. Stay strong Dustin.
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Old 05-28-2013, 09:31 AM   #823 (permalink)
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Sorry I haven't posted lately ... just really taking a toll on me as of late . Having trouble sleeping again . Stirring and emotionally crazy dreams . Kinda feeling heartbroken watching him decline . So many people who we have been fighting our fight with , and supporting each other with their and our children and their disease have been losing their babies . Seriously , 4 this month . Sooooooo sad . I am not ready .... But fear he is ... heartbroken was an understatement ...

That being said .. We have strung together quite a few of our new standard for good days
This hurts me to the core of my heart. I feel for you and your family. Hope there are many more good days ahead. Stay strong
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Old 05-28-2013, 10:29 AM   #824 (permalink)
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Connor keep string the good days together! Another 36,500 would do! There is no quit in this strong little man!
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Old 05-28-2013, 11:49 AM   #825 (permalink)
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The valor in that boy's eyes could fight a war.

He and all others in situations like his are the fuel for human spirit.

I wish no such pain onto anyone, but somehow feel glad to have at least played a part in what I hope is support during your family's struggle.

If the day comes when Connor is no longer around you can rest assured that he will be held up within our hearts forever. That boy will never be forgotten.

But I still pray that a miracle can happen.

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Sorry I haven't posted lately ... just really taking a toll on me as of late . Having trouble sleeping again . Stirring and emotionally crazy dreams . Kinda feeling heartbroken watching him decline . So many people who we have been fighting our fight with , and supporting each other with their and our children and their disease have been losing their babies . Seriously , 4 this month . Sooooooo sad . I am not ready .... But fear he is ... heartbroken was an understatement ...

That being said .. We have strung together quite a few of our new standard for good days
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