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Old 01-22-2013, 12:04 PM   #101 (permalink)
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Restoring my faith in mankind one post at a time .. LoL . Again thank you everyone for everything . It does mean a lot more then you all know . And again I do appoligize for acting out harshly when someone posted anything I perceived as negative . As I said before, at this point in my life I just really do have zero tolerance for idiots . I wasn't trying to debate anything . Just trying to build a army of prayers for my son .

We have a very tough meeting today, (@4pm EST) as my and my family have our "care" meeting . Where we will have to discuss things such as Quality of Life vs Quantity of Life, and any decision we want made from here on out including things like, traches, DNR orders, and CPR . We also have to make decisions as to what machines we are willing to use on him, trial drugs, scientific research ... makes me sad even typing it

I have had 9 days here now and have had to come to peace with god, with myself, with my place on this planet . I have to be okay making these decisions and able to live with them . I have had several euphoric moments and several more to come I am sure . These are no decisions any parent should have to make .

Last, for now that is, I received a package in the mail yesterday (received saturday, mom handed it to me yesterday) with no return address and a CHICAGO postmark .. letter states " Hello Dustin , and family . I am so sorry for what you and your family are going through . It breaks my heart . I wish I had money to help you and your family but I do not . I blow all my money on sportcards . I wish I had a Michael Jordan card to offer but I do not . ( I know you are a fan ) I know you are a card guy so I thought this might bring a smile to your face and maybe give you a moment of normalness . And maybe worth a few bucks here real soon . Feel free to sell or keep or whatever you like . I wish I could do more . Do not let ANYONE bring you down . I send this to you in memory of my son . May god be with you and your family ." In the envelope was a Colin Kaepernick 3 color patch auto rookie /525 . I can only assume it was someone on this board . I am so thankful and it did make me smile . I truly have no idea who sent it , so if you are reading this thank you so very much . What a awesome gesture and I am so sorry for your own loss . Connor is my little buddy and we always sit and watch football together . Since the Monday he was born and we sat and watched Peyton Manning (sept 17) . Your gift means a lot . And go 9ers .

Keep the positive thoughts coming in our direction and I have never been so anxious or nervous for a meeting in my life . Team Connor !! No Matter What !!
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Old 01-22-2013, 04:03 PM   #102 (permalink)
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TBH I really hope Lockdown32 is right. It breaks my heart that this poor little baby is in the hospital fighting for his life right now. No baby should ever have to go though that ever. He needs nothing but positive thoughts and prayers right now.
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Old 01-24-2013, 12:33 PM   #103 (permalink)
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Bump this up. My Family prays for Connor each night as a family. God Bless and Connor get well bud!

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Old 01-24-2013, 01:18 PM   #104 (permalink)
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Poet - I will be honest, I don't know if I'd have the strength to write some of the things you have written. I will leave it at that because further words are wholly inadequate. All I wish is that you and your family make it through this with as much strength as possible. Our collective thoughts remain with you and yours throughout the rest of this situation, sincerely. I wish for only the best possible outcome, whatever that may be.
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Old 01-24-2013, 01:49 PM   #105 (permalink)
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All the best to Connor and your family.
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Old 01-25-2013, 12:47 AM   #106 (permalink)
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Diagnosis did come back today instead of tomorrow . He is positive SMA type 1

Two big surgeries tomorrow . Very nervous .

Have a meeting with hospice for my 4 month old son .

Short and sweet , need to sleep .

Waiting to wake up from this nightmare .

www.facebook.com/prayersforconnor

Like, share, pray, positive thouths and best wishes please
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Old 01-25-2013, 04:53 AM   #107 (permalink)
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I wouldn't be able to type. Still wishing you the best and waiting for good news.
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Old 01-25-2013, 04:58 AM   #108 (permalink)
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Hang in there Connor... I will be praying for you
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Old 01-25-2013, 06:32 AM   #109 (permalink)
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I do not have words to write.

I only have the prayers that I am thinking.
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Old 01-25-2013, 06:37 AM   #110 (permalink)
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I hope it is okay with brokepoet.....

I changed my avatar for Connor....

I think it would be nice for everyone to do the same....
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Old 01-25-2013, 09:57 AM   #111 (permalink)
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Quote:
Originally Posted by TheHeel View Post
I hope it is okay with brokepoet.....

I changed my avatar for Connor....

I think it would be nice for everyone to do the same....
Done...unless OP wants it removed.

KEEP FIGHTING CONNOR!!
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Old 01-25-2013, 10:06 AM   #112 (permalink)
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I also shared the Facebook page with my FB Friends.
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Old 01-25-2013, 10:13 AM   #113 (permalink)
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Nothing but prayers here.
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Old 01-25-2013, 10:31 AM   #114 (permalink)
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Quote:
Originally Posted by thebrokepoet View Post
Thinking about going " rally beard " . No shave till hes home .
My youngest son was diagnosed with cancer in 2001 when he was 9. When he was going through Chemo he lost his hair. I offered to shave my head too, and he calmly said don't do that you're ugly enough as it is.
So I suggested I grow a goatee which he agreed to. 11 1/2 years I still have it and will never shave it. His attitude got us through a tough time. He's been cancer free for over 10 years and the strongest person I know.

My prayers are with you and your family.
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Old 01-25-2013, 10:31 AM   #115 (permalink)
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best wishes from this point forward. I have changed my avatar also and I will check out the fb page and pass on as needed. I just got the shivers from a few others posts on this last page.
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Old 01-25-2013, 10:54 AM   #116 (permalink)
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Thank you for the avatar idea . I love it . Just showed wifey . She loves it too . Thank you all so much . Surgery @ 2 . Family starting to arrive . Long day . He is a tough little guy . Need something for anxiety I think
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Old 01-25-2013, 11:05 AM   #117 (permalink)
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Thought and prayers from my family to yours.
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Old 01-25-2013, 12:05 PM   #118 (permalink)
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<---------------- and done. Hope the little guy is doing well today. In my prayers
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Old 01-25-2013, 12:06 PM   #119 (permalink)
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Quote:
Originally Posted by Bottom9th View Post
My youngest son was diagnosed with cancer in 2001 when he was 9. When he was going through Chemo he lost his hair. I offered to shave my head too, and he calmly said don't do that you're ugly enough as it is.
So I suggested I grow a goatee which he agreed to. 11 1/2 years I still have it and will never shave it. His attitude got us through a tough time. He's been cancer free for over 10 years and the strongest person I know.

My prayers are with you and your family.

BAWAHAHAHAHAHA....Great response!
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Old 01-25-2013, 12:11 PM   #120 (permalink)
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Can someone provide this avatar challenged guy the link so I can change mine?
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Old 01-25-2013, 02:44 PM   #121 (permalink)
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Surgeries have begun . Pacing the waiting room like a starved caged lion
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Old 01-25-2013, 03:06 PM   #122 (permalink)
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Quote:
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Surgeries have begun . Pacing the waiting room like a starved caged lion
I'm praying for your little guy and your family. Will change the avatar after work. Stay strong!
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Old 01-25-2013, 04:19 PM   #123 (permalink)
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Ok, I'm crushed by the news.

Hoping for a miracle here --- definitely thinking about you, the little guy, and the rest of the family.

Wishing you only the best possible outcome here.
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Old 01-25-2013, 04:33 PM   #124 (permalink)
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Quote:
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Surgeries have begun . Pacing the waiting room like a starved caged lion
Thoughts and prayers to you and you family.
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Old 01-25-2013, 04:54 PM   #125 (permalink)
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I saw the FB post "Out and doing great".

Glad to hear that.
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