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Old 01-25-2013, 05:20 PM   #126 (permalink)
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Can someone provide this avatar challenged guy the link so I can change mine?
Hover your mouse over the avatar, right click Save Picture As, Save it to your computer and then upload it.
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Old 01-25-2013, 05:27 PM   #127 (permalink)
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Still thinking of your family and still praying. If there is something I can do to help or you need to ever chat feel free to PM.. Stay strong.
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Old 01-25-2013, 07:06 PM   #128 (permalink)
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Checked the latest Facebook posts...come on Connor,you can do this! Thoughts and prayers are with you all.
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Old 01-25-2013, 11:42 PM   #129 (permalink)
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Brother I changed my avitar for your little guy! like I said before my daughter has gone through multiple brain surgeries for seizures and a shunt malfuctions since birth and now she is 13 and one tough cookie-so prayers for connor and may this only be a bump in his road to recovery and a strong future ahead of him-GOD BLESS YOU AND YOUR FAMILY,Hang in there this is just a test. Trust me I know but kids are tough and he will get through this
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Old 01-26-2013, 08:20 PM   #130 (permalink)
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I am so sorry that you are having to watch your baby boy go through this and that you and your family are going through it a well. I did the only thing I could think of and shared your link asking everyone to pray.
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Old 01-26-2013, 08:35 PM   #131 (permalink)
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Jealous of anything normal
Drew three Jordan sketch cards ... One is kinda awesome
Certain nurses annoy me
Tomorrow is night 14
You know how you hear about certain things and you think, thats horrible, thank god that will never happen to me
Is the ProBowl tomorrow
Seen a stray dog outside our window and I watched it for like 23 minutes, then considered this time well spent. Hours later I wondered what it was doing
I would sleep ...IF I COULD SLEEP
I would give anything to take his place
Endurance is now the ' name of the game '

And I call this post the last ten thoughts of a crazed man
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Old 01-26-2013, 08:41 PM   #132 (permalink)
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Your son is in my prayers!


God bless him
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Old 01-26-2013, 09:14 PM   #133 (permalink)
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Thank you !
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Old 01-26-2013, 10:22 PM   #134 (permalink)
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Jealous of anything normal
Drew three Jordan sketch cards ... One is kinda awesome
Certain nurses annoy me
Tomorrow is night 14
You know how you hear about certain things and you think, thats horrible, thank god that will never happen to me
Is the ProBowl tomorrow
Seen a stray dog outside our window and I watched it for like 23 minutes, then considered this time well spent. Hours later I wondered what it was doing
I would sleep ...IF I COULD SLEEP
I would give anything to take his place
Endurance is now the ' name of the game '

And I call this post the last ten thoughts of a crazed man
LoL @ the dog . Awesome

I think its okay to feel crazy . Cant imagine . Read a little about the desease then stopped . Prayers Brother
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Old 01-27-2013, 11:57 AM   #135 (permalink)
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Just talked to the doctor. Sounds like the breathing tube comes out in the morning :/ Scary . Have to see how he does . Pray for the best , hes been on it for 14 days now , and they are not reintubating him . Make it or break it kinda thing . Me and Wife just got into it , over nothing , and she stompped away mad . I hate HATE it here .
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Old 01-27-2013, 12:07 PM   #136 (permalink)
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Just talked to the doctor. Sounds like the breathing tube comes out in the morning :/ Scary . Have to see how he does . Pray for the best , hes been on it for 14 days now , and they are not reintubating him . Make it or break it kinda thing . Me and Wife just got into it , over nothing , and she stompped away mad . I hate HATE it here .
Let her stomp away, she will get over it. Nerves are getting the best of both of you. You need to be strong for the entire family. Still praying.
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Old 01-27-2013, 03:12 PM   #137 (permalink)
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Still here for you man, as little of a difference as that may make, still here. Damn sometimes I hate life, and I too would trade with that stray dog. Stay strong, please.
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Old 01-27-2013, 03:51 PM   #138 (permalink)
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I know there's not much anyone can say or do,but hope it helps a little to know that there are people out here thinking of you and praying for your son. The arguing is normal in a situation as stressful as this one. Hoping and praying for a positive outcome.
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Old 01-27-2013, 09:26 PM   #139 (permalink)
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My goodluck bump for the morning . Thanks again everyone . Alarms set for 6am . Tube out between 8 to 10 .
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Old 01-27-2013, 10:38 PM   #140 (permalink)
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Another GL bump for sure. Keep us posted....
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Old 01-28-2013, 10:28 AM   #141 (permalink)
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James 5:15-16

And the prayer of faith will save the one who is sick, and the Lord will raise him up. And if he has committed sins, he will be forgiven. 16 Therefore, confess your sins to one another and pray for one another, that you may be healed. The prayer of a righteous person has great power as it is working.
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Old 01-28-2013, 01:42 PM   #142 (permalink)
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Breathing tube is out and he has been stable for about 3 hours now . Still hooked up you the ventilator, helping him breath, but much less invasive then the tube down his throat . Meeting with Hospice around 4 I believe . Not cool . Let us just celebrate the moment . However, cannot sit in idle with this desease either . Loots like treatment in Chicago afterwards now . Advance science . Cure SMA
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Old 01-28-2013, 03:08 PM   #143 (permalink)
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Glad that God awful tube is out...gotta take this one step at a time. There are plenty of us sending thoughts and prayers your way. Try to stay strong!
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Old 01-28-2013, 03:22 PM   #144 (permalink)
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As a father of 4 healthy kids I can't imagine the ordeal your family is going through. Although these are only words, be strong and spend your time with Connor. Glad that he is making progress and hopefully you can all get back to your normal lives soon. God bless you and your family, and we are all praying for a swift recovery for Connor.
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Old 01-28-2013, 06:31 PM   #145 (permalink)
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Poet, I don't have children and certainly can't begin to say I have any clue how you must feel. I am so sorry that your young son is going through this ordeal. The mention of hospice for a four month old is heartbreaking. I hope that you and your family can find some way to stay strong and cope with this. My thoughts are with Connor.
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Old 01-28-2013, 06:40 PM   #146 (permalink)
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Glad to hear the tube is out! Stay strong man, we're all behind you
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Old 01-28-2013, 06:43 PM   #147 (permalink)
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Here with you man.
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Old 01-28-2013, 08:00 PM   #148 (permalink)
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good to hear the tube is out! 1 step at a time
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Old 01-28-2013, 10:36 PM   #149 (permalink)
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Praying, praying and more praying! Thank God the tube is out.

Kevin
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Old 01-28-2013, 11:10 PM   #150 (permalink)
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Been following the story on Facebook, and I'm very happy that the tube is out and he can be more comfortable. Best of luck, pulling for the little guy!
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